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The Electronic Data Methods (EDM) forum for comparative effectiveness research (CER).

Erin Holve1, Courtney Segal, Marianne Hamilton Lopez

  • 1Electronic Data Methods Forum, AcademyHealth, Washington, DC 20036, USA. erin.holve@academyhealth.org

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|June 14, 2012
PubMed
Summary
This summary is machine-generated.

The Electronic Data Methods (EDM) Forum synthesized lessons from eleven projects using electronic clinical data for comparative effectiveness research (CER) and patient-centered outcomes research (PCOR). It identified common challenges and strategies to advance data use in healthcare.

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Area of Science:

  • Health Informatics
  • Comparative Effectiveness Research
  • Patient-Centered Outcomes Research

Background:

  • AcademyHealth's Electronic Data Methods (EDM) Forum convened eleven projects focused on electronic clinical data.
  • Projects utilize data for comparative effectiveness research (CER) and patient-centered outcomes research (PCOR).
  • The initiative aims to share lessons and address common challenges in data infrastructure and utilization.

Purpose of the Study:

  • To collect, synthesize, and share lessons from projects building infrastructure and using electronic clinical data.
  • To provide a framework of common challenges encountered in CER and PCOR projects.
  • To advance the national dialogue on leveraging electronic clinical data for research.

Main Methods:

  • Text review of funding opportunity announcements, project research plans, and websites.
  • Information gathering through project presentations, principal investigator interviews, and Agency for Healthcare Research and Quality (AHRQ) staff consultations.
  • Six site visits were conducted to gain in-depth understanding.

Main Results:

  • Eleven diverse networks across over 20 states are building infrastructure and innovative strategies.
  • Projects address methodological, data, and informatics challenges within a common framework.
  • Participant networks vary significantly in size, serving diverse populations and conditions.

Conclusions:

  • The EDM Forum facilitates knowledge sharing to enhance the use of electronic clinical data for CER and PCOR.
  • Efforts aim to overcome limitations of traditional research methods and data sources.
  • The ultimate goal is to build robust infrastructure and evidence for a learning healthcare system to improve patient outcomes.