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Updated: May 19, 2026
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Extrapulmonary lymphangioleiomyomatosis: a wolf in sheep's clothing
Aurélie Maria Derweduwen1, Erik Verbeken, Marguerite Stas
1Unit for Interstitial Lung Diseases, Department of Respiratory Medicine, University Hospital Leuven, Leuven, Belgium. aurelie.derweduwen@uzleuven.be
Abstract:
We present a case of a 32-year-old woman who was diagnosed with lymphangioleiomyomatosis (LAM) after detecting a mass in the upper anterior mediastinum. Two years after presentation another metastatic localisation of LAM occurred in the cervical region. With this article we would like to highlight the fact that there are still a lot of unanswered questions, especially regarding the best management of extrapulmonary LAM.
