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Published on: January 17, 2011
Developing a long-term ventilation service in a children's hospice: an illustrative case study
1Florence Nightingale School of Nursing and Midwifery, King's College London, London, England. andrea.cockett@kcl.ac.uk
Families caring for children requiring long-term ventilation often struggle to find adequate respite care. This case study details the successful development and implementation of a specialized short-break service at a children
Area of Science:
- Pediatric Palliative Care
- Healthcare Service Development
Background:
- Children requiring long-term ventilation face significant challenges accessing appropriate respite services.
- Parents of these children experience substantial burdens in providing continuous care.
Purpose of the Study:
- To describe the development of a bespoke respite service for children using long-term ventilation at home.
- To illustrate the process through a case study of one family's experience.
Main Methods:
- Case study approach detailing service development in response to local needs.
- Development of specialized assessment tools and staff training programs.
- Inclusion of a family's journey through the service.
Main Results:
- A new respite service was successfully developed and implemented at a children's hospice.
- Bespoke documentation and staff training were key components of the service development.
- The case study highlights the practical application and benefits of the service.
Conclusions:
- The development of specialized respite services is crucial for supporting children with long-term ventilation and their families.
- A tailored approach, including bespoke assessments and staff training, enhances service provision.
- This model offers a potential solution for unmet respite care needs in pediatric long-term ventilation.
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