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Updated: May 17, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
[Patient involvement in patient safety is necessary, but the effect is undocumented]
Henriette Lipczak1, Helle Max Martin, Vinnie Andersen
1Kvalitet & Patientsikkerhed, Kræftens Bekæmpelse, Strandboulevarden 49, Copenhagen. hlz@cancer.dk
Abstract:
Patient involvement has been on the patient safety agenda for years. Several initiatives have been launched, but in spite of support from health-care professionals, patients and administrators the concept is not yet integrated in every day clinical practice. The vision is to create partnerships for the purpose of preventing patients from harm due to their contact to health care. The literature offers good ideas but is also characterized by lack of methodological rigor. A change of values and habits, a supportive infrastructure and further research is needed to reach the goal.
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