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Patient experiences with research in a tertiary care setting
1Johns Hopkins University, School of Nursing, Baltimore, MD.
Nursing Research
|May 1, 1990
Summary
Patients often have poor recall of informed consent details. This survey found patients desire more knowledge about clinical research purposes, risks, and benefits, and are more willing to participate if educated.
Area of Science:
- Medical research ethics
- Patient engagement in clinical trials
Background:
- Patient understanding and recall of information during the informed consent process are frequently inadequate.
- Effective communication in clinical research is crucial for patient comprehension and trust.
Purpose of the Study:
- To assess patient attitudes towards clinical research.
- To identify patients' desired knowledge regarding research processes.
- To understand patient willingness to participate in research within a tertiary care setting.
Main Methods:
- A self-report questionnaire was administered to 277 patients across various services (oncology, obstetrics/gynecology, medicine, neurosciences, surgery, ophthalmology).
- Data were collected from patients at a large tertiary care facility.
Main Results:
- Most patients expressed positive attitudes towards research.
- Awareness of human subjects approval processes and the role of nurses in research was low.
- Patients indicated a need for more information on research purposes, risks, and benefits.
- Higher education levels correlated with increased willingness to participate, even with minimal personal benefit.
Conclusions:
- While patients are generally open to research, there are significant gaps in their understanding of research oversight and conduct.
- Educational interventions are needed to improve patient knowledge about clinical research.
- Addressing knowledge deficits may enhance patient participation in clinical research.