Key ethical issues in pediatric research: islamic perspective, Iranian experience
Mina Mobasher1, Pooneh Salari, Bagher Larijani
1Medical Ethics and History of Medicine Research Center, Tehran University of Medical Sciences, Tehran, Iran ; Faculty of Medicine, Kerman University of Medical Sciences, Kerman, Iran.
Insights
Pediatric research faces ethical challenges like informed consent. An Islamic perspective offers a clearer approach to ethical standards in child research, considering cultural and religious variations.
Area of Science:
- Medical Ethics
- Pediatric Research
- Islamic Bioethics
Background:
- Conducting pediatric research presents unique ethical challenges due to children's vulnerability.
- Key ethical considerations include informed consent and risk-benefit assessment.
- Socio-cultural and religious contexts significantly impact the application of ethical standards in pediatric research.
Purpose of the Study:
- To critically review existing pediatric research guidelines and literature.
- To compare different viewpoints on applying ethical standards in pediatric research.
- To explore the role of Islamic perspectives in addressing ethical dilemmas in pediatric research.
Main Methods:
- A comprehensive literature review of ethical guidelines and scholarly works.
- Comparative analysis of various ethical viewpoints.
- Inclusion of Islamic legal and ethical principles.
Main Results:
- Pediatric research guidelines share a common ethical foundation but exhibit variations influenced by cultural, religious, and social factors.
- Current ethical standards have limitations in defining informed consent based on a child's age and capacity.
- The Islamic approach provides a nuanced understanding of development and puberty, aiding ethical considerations.
Conclusions:
- The Islamic perspective offers valuable insights for a more rational and applicable ethical framework in pediatric research.
- Addressing cultural and religious diversity is crucial for universal ethical standard implementation.
- Refining informed consent processes in pediatric research is essential.
Objective:
The importance of pediatric research especially in the ethically proven trials resulted in considerable legislative attempts in association with compiling ethical guidelines. Because of children's vulnerability conducting pediatric research raises different ethical issues; the two most important of which are informed consent and risk-benefit assessment. Differences in religious and socio-cultural context limit implication of ethical standards.
Methods:
At the aim of finding a solution we critically reviewed guidelines, and literatures as well as Islamic points in addition to comparing different viewpoints in application of ethical standards in pediatric research.
Findings:
The literature review showed that pediatric research guidelines and authors' viewpoints have the same basic ethical core, but there are some variations; depend on cultural, religious, and social differences. Furthermore, these standards have some limitations in defining informed consent according to child's age and capacity upon application.
Conclusion:
In this regard Islamic approach and definition about growth development and puberty sheds light and clarifies a clearer and more rational address to the issue.
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