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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Quality of life of former premature infants during adolescence and beyond
1Division of Neonatology, McMaster University, 1200 Main St West, Room 4F, Hamilton, On, Canada L8N 3Z5. saigal@mcmaster.ca
Insights
Children born prematurely report high quality of life, comparable to peers born at term. This review examines quality of life measurement in adolescents and young adults who were born prematurely.
Area of Science:
- Pediatrics
- Developmental Psychology
- Health Outcomes Research
Background:
- Quality of life (QoL) assessment is increasingly prioritized for children and adults.
- A shift towards transparency includes personal burden of illness and life satisfaction alongside health outcomes.
- Despite a lack of consensus on QoL definitions and measurement tools, research, especially on former premature infants, has surged.
Purpose of the Study:
- To review the conceptual framework of self-reported quality of life.
- To examine measurement tools for quality of life in former premature infants.
- To focus on QoL in adolescence and young adulthood.
Main Methods:
- Literature review focusing on quality of life in former premature infants.
- Analysis of studies measuring self-reported quality of life.
- Synthesis of findings related to adolescence and young adulthood.
Main Results:
- Former premature infants often report quality of life nearly equivalent to those born at term.
- Self-rated quality of life in former premature infants exceeds predictions by health professionals.
- Disability status does not necessarily correlate with lower self-reported quality of life.
Conclusions:
- Self-reported quality of life in former premature infants is a critical metric.
- Adolescents and young adults born prematurely demonstrate resilience in their QoL perceptions.
- Further research is needed to refine QoL measurement and understanding in this population.
Abstract:
Interest in determining the quality of life of children and adults is now considered a priority. This is a result of a shift in thinking with greater transparency in finding out not only the health outcomes, but also the personal burden of illness and life satisfaction for the individual. However, there is still no consensus on the definition of quality of life or the appropriate tools to measure the same. In the last three decades there has been an exponential increase in the number of publications measuring quality of life, particularly in former premature infants. Most studies show that despite disabilities, children rate their quality of life almost equivalent to that of children born at term, and higher than that predicted by health professionals. This review will focus on the conceptual framework and measurement of self-reported quality of life in the context of former premature infants at adolescence and young adulthood.
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