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Updated: May 12, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
Published on: January 12, 2019
Correlates of care for young men with Duchenne and Becker muscular dystrophy
Jennifer G Andrews1, Melinda F Davis, F John Meaney
1Department of Pediatrics, University of Arizona, P.O. Box 245073, Tucson, Arizona, 85724-5073, USA.
Introduction:
In progressive conditions, such as Duchenne and Becker muscular dystrophy (DBMD), the need for care may outpace care use. We examined correlates that contribute to utilization of needed care.
Methods:
Structured interviews were conducted on use of care among 34 young men with DBMD who were born before 1982.
Results:
Disease severity, per capita income, and presence of other relatives with DBMD predicted greater use of services. Race/ethnicity, acculturation, and level of caregiver education did not significantly predict service utilization.
Conclusions:
We identified disparities in receipt of healthcare and related services in adult men with DBMD that can affect quality of life. Despite the high disease severity identified in this population, these men utilized only half of the services available to individuals with significant progressive conditions. Providers should be aware of low service utilization and focus on awareness and assistance to ensure access to available care.
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