Funding resources for rare disease research

Area of Science:

• Rare disease research
• Neuroscience
• Biomedical research funding

Background:

• Research funding is crucial for scientific advancement, especially for rare conditions like Batten disease.
• Securing adequate financial support is a significant challenge for researchers studying rare diseases.
• Batten disease, a group of rare genetic disorders, requires sustained research efforts for effective treatments.

Purpose of the Study:

• To identify and categorize past funding sources for Batten disease research.
• To provide a comprehensive overview of financial support mechanisms for Batten disease investigators.
• To assist researchers in navigating funding landscapes and securing resources for their studies.

Main Methods:

• Conducted a keyword search of the Acknowledgement sections in peer-reviewed literature.
• Focused on publications related to Batten disease within the last 6.5 years.
• Analyzed and cataloged identified funding sources.

Main Results:

• Identified a substantial number of 193 distinct funding sources supporting Batten disease research.
• Demonstrated the diversity of financial backing available for this rare condition.
• Highlighted the importance of acknowledging all contributors to research endeavors.

Conclusions:

• Despite challenges, numerous funding avenues exist for Batten disease research.
• This overview can guide researchers in identifying potential funding opportunities.
• Facilitating access to funding information can accelerate progress from discovery to application for Batten disease.