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[Advance care planning and severe chronic diseases]
Germán Diestre Ortín1, Vanessa González Sequero, Núria Collell Domènech
1Centro Sociosanitario Albada, Corporación Sanitaria Parc Taulí, Sabadell, Institut Universitari Parc Taulí - Universitat Autónoma de Barcelona (UAB), Campus d'Excelència Internacional, Bellaterrra, Barcelona, España.
Revista Espanola De Geriatria Y Gerontologia
|May 7, 2013
Summary
Advanced care planning (ACP) is uncommon in severe chronic disease patients, with only 16.3% having records. This low prevalence impacts end-of-life decision-making aligned with patient values.
Area of Science:
- Geriatrics
- Palliative Care
- Bioethics
Context:
- Advanced care planning (ACP) is crucial for individuals lacking decision-making capacity, especially concerning end-of-life care.
- Severe chronic diseases pose significant challenges to informed consent and require proactive planning.
Purpose:
- To investigate the prevalence of documented advanced care planning (ACP) in patients with severe chronic diseases.
- To assess the extent to which patient preferences are recorded for end-of-life medical decisions.
Summary:
- A review of 135 patients with advanced dementia, ALS, Parkinson's, severe lung/heart/kidney disease, or cancer was conducted.
- Only 16.3% of patients had documented ACP, with most indicating a desire to forgo life-sustaining treatments if unable to consent.
- A mere two patients possessed a formal legal living will.
Impact:
- The low registration rate of ACP highlights a potential gap in ensuring patient autonomy and values are respected during critical care decisions.
- Findings underscore the need for improved integration and documentation of ACP in routine care for patients with severe chronic conditions.
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