[What congenital heart diseases may cause problems in adulthood?]
Related Experiment Video
Updated: May 11, 2026

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
1Unité des cardiopathies congénitales de l'adulte, Hôpital européen Georges-Pompidou, et centre de référence des malformations cardiaques congénitales complexes (M3C), service de cardiologie pédiatrique, hôpital Necker, 75015 Paris, France. laurence.iserin@egp.aphp.fr
Insights
Adults with congenital heart disease now outnumber children born with these conditions. This growing population faces lifelong risks, including heart failure and arrhythmias, highlighting the need for continued specialized care.
Area of Science:
- Cardiology
- Adult Congenital Heart Disease
Context:
- The increasing survival of patients with congenital heart disease (CHD) into adulthood is a major success of modern cardiac care.
- Adults with CHD now outnumber pediatric cases, representing a significant and growing patient demographic.
Purpose:
- To review the unique challenges and complications faced by the adult population with congenital heart disease.
- To identify high-risk situations and critical transition periods for adults with CHD.
Summary:
- Adults with CHD, even those with native disease, often experience long-term issues like arrhythmias, heart failure (particularly right-sided), endocarditis, and pulmonary hypertension.
- Patients with more complex CHD are at higher risk for adverse outcomes.
- Loss of follow-up during the transition from pediatric to adult care is a critical risk factor.
Impact:
- Highlights the evolving landscape of cardiovascular medicine, emphasizing lifelong management of CHD.
- Underscores the importance of specialized adult congenital heart disease (ACHD) programs and seamless care transitions to mitigate complications and improve long-term patient outcomes.
Abstract:
The number of patients with congenital heart disease exceeds now the number of children born with these defects. This is related to the "success story" of cardiac surgery and interventional catheterism. The prevalence of this new population is about 3-4 patients/1000 adults in the general population. Some of these patients have native disease, with a relatively good tolerance up until adulthood. Nevertheless, these patients are rarely completely cured, and they face problems such as threatening atrial or ventricular arrhythmias, heart failure (more often right heart failure) endocarditis or pulmonary hypertension. Patients with complex diseases are more at risk of complications. Situations "at risk" are described in this review, one of them being the loss of follow up particularly during the transition between paediatric care and adulthood.
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