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Involving children in non-therapeutic research: on the development argument
Linus Broström1, Mats Johansson
1Department of Medical Ethics, Lund University, BMC I12, 221 84, Lund, Sweden.
Insights
Research involving children poses ethical dilemmas, particularly when it offers no direct medical benefit. Arguments that such non-therapeutic studies aid moral development are currently underdeveloped and unconvincing.
Area of Science:
- Bioethics
- Pediatric Research Ethics
Background:
- Non-therapeutic research on children presents significant ethical challenges.
- Children cannot provide informed consent for research participation.
- Such research often involves risks or discomfort without direct medical benefit to participants.
Purpose of the Study:
- To critically evaluate the ethical justification of non-therapeutic research in children.
- To address the argument that participation in such research indirectly benefits children by fostering moral development.
Main Methods:
- Ethical analysis of existing arguments concerning non-therapeutic pediatric research.
- Critique of the claim that moral development constitutes a sufficient indirect benefit.
Main Results:
- The ethical concerns regarding the instrumentalization of children in non-therapeutic research remain significant.
- The argument that non-therapeutic research promotes children's moral development is considered underdeveloped.
Conclusions:
- The current ethical frameworks struggle to adequately address the complexities of non-therapeutic research involving children.
- Further development of ethical arguments is required to justify such research, beyond speculative indirect benefits like moral development.
Abstract:
Non-therapeutic research on children raises ethical concerns. Such research is not only conducted on individuals who are incapable of providing informed consent. It also typically involves some degree of risk or discomfort, without prospects of medically benefiting the participating children. Therefore, these children seem to be instrumentalized. Some ethicists, however, have tried to sidestep this problem by arguing that the children may indirectly benefit from participating in such research, in ways not related to the medical intervention as such. It has been argued, for example, that non-therapeutic pediatric research does not instrumentalize the children enrolled since it has the prospects of furthering their moral development. We argue that this argument is far too undeveloped to be taken seriously.
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