Involving children in non-therapeutic research: on the development argument

Linus Broström1, Mats Johansson

  • 1Department of Medical Ethics, Lund University, BMC I12, 221 84, Lund, Sweden.

Insights

Research involving children poses ethical dilemmas, particularly when it offers no direct medical benefit. Arguments that such non-therapeutic studies aid moral development are currently underdeveloped and unconvincing.

Area of Science:

  • Bioethics
  • Pediatric Research Ethics

Background:

  • Non-therapeutic research on children presents significant ethical challenges.
  • Children cannot provide informed consent for research participation.
  • Such research often involves risks or discomfort without direct medical benefit to participants.

Purpose of the Study:

  • To critically evaluate the ethical justification of non-therapeutic research in children.
  • To address the argument that participation in such research indirectly benefits children by fostering moral development.

Main Methods:

  • Ethical analysis of existing arguments concerning non-therapeutic pediatric research.
  • Critique of the claim that moral development constitutes a sufficient indirect benefit.

Main Results:

  • The ethical concerns regarding the instrumentalization of children in non-therapeutic research remain significant.
  • The argument that non-therapeutic research promotes children's moral development is considered underdeveloped.

Conclusions:

  • The current ethical frameworks struggle to adequately address the complexities of non-therapeutic research involving children.
  • Further development of ethical arguments is required to justify such research, beyond speculative indirect benefits like moral development.

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