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[Withdrawal of assisted ventilation in the home: making decisions in paediatric palliative care]

A García-Salido1, M Monleón-Luque2, M Barceló-Escario2

  • 1Unidad de Cuidados Intensivos, Hospital Infantil Universitario Niño Jesús, Madrid, España; Unidad de Cuidados Paliativos Pediátricos, Hospital Infantil Universitario Niño Jesús, Madrid, España.

Anales De Pediatria (Barcelona, Spain : 2003)
|June 26, 2013
PubMed

Insights

Pediatric end-of-life care is evolving with advanced technology. Multidisciplinary teams providing 24/7 home care can improve quality of life and reduce hospitalizations for children with serious illnesses.

Area of Science:

  • Pediatric Palliative Care
  • Medical Ethics
  • Home Healthcare

Background:

  • Increasing use of high-technology interventions in pediatric palliative care.
  • Growing need for specialized end-of-life care services for children.
  • Focus on improving quality of life for children with life-limiting conditions.

Observation:

  • Multidisciplinary care teams offering 24/7 home care can potentially reduce hospital admissions.
  • Adaptation of treatment plans is crucial for better quality of life and avoiding readmissions.
  • Case study focuses on decision-making and withdrawal of mechanical ventilation at home.

Findings:

  • Successful home-based withdrawal of mechanical ventilation requires careful planning and execution.
  • Effective decision-making processes involve families and healthcare providers.
  • Comprehensive clinical management until death is essential for patient and family support.

Implications:

  • Home-based end-of-life care can be a viable alternative to prolonged hospitalization.
  • Enhanced support for multidisciplinary teams can facilitate complex care decisions at home.
  • This approach may set a precedent for pediatric palliative care, prioritizing patient comfort and family wishes.

Keywords:
Airway extubationCuidados intensivosCuidados paliativosDomiciliary careExtubaciónIntensive carePaediatricsPalliative carePediatríaTratamiento domiciliario

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