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Pediatric HIV disclosure: a process-oriented framework
Kathryn Cantrell1, Nehali Patel, Belinda Mandrell
1Child Life Program, St. Jude Children's Research Hospital, Memphis, TN, USA. kathryn.cantrell@gmail.com
Insights
Caregivers can now use a new framework to disclose human immunodeficiency virus (HIV) status to children. This guide ensures disclosure aligns with a child's cognitive development, promoting understanding and acceptance.
Area of Science:
- Pediatrics
- Psychology
- Infectious Diseases
Background:
- Vertically transmitted human immunodeficiency virus (HIV) infection presents unique challenges for pediatric patients and their caregivers.
- Disclosure of HIV status to children is crucial but lacks standardized guidance, causing caregiver stress.
- Existing frameworks for HIV disclosure are limited, necessitating a structured approach.
Purpose of the Study:
- To propose a process-oriented, educational framework for disclosing HIV status to children and adolescents.
- To integrate Piaget's cognitive development theory into the HIV disclosure process.
- To provide a replicable model for healthcare providers to guide families through disclosure.
Main Methods:
- Development of a 10-stage sequential disclosure framework.
- Inclusion of three assessment stages to gauge developmental readiness.
- Integration of cognitive development principles to tailor disclosure content.
Main Results:
- A structured, stage-based framework for HIV disclosure in pediatric populations.
- Emphasis on assessing child's developmental stage for effective communication.
- A practical tool for healthcare providers to facilitate understanding of HIV status.
Conclusions:
- The proposed framework offers a systematic approach to HIV status disclosure for children and adolescents.
- This model supports caregivers and healthcare providers in navigating sensitive conversations.
- Implementing this framework can enhance a child's comprehension and adjustment to living with HIV.
Abstract:
As children with vertically transmitted human immunodeficiency virus (HIV) infection live into adulthood, caregivers face the stressful process of informing their children about their infection. Although developmentally guided disclosure of HIV status is widely recommended, there are few specific frameworks to guide caregivers, families, and health care providers through the disclosure process. The authors propose a process-oriented framework for the disclosure of HIV in children and adolescents. This educational framework incorporates Piaget's cognitive development theory in an attempt to disclose and assist children and adolescents in understanding their HIV status. The framework is organized into 10 sequential stages of disclosure and three assessment stages in which health care providers discuss HIV health concepts with the child and caregiver, based on the child's developmental readiness. The described framework can be easily replicated by health care providers in disclosing disease status to children with HIV.
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