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Pediatric HIV disclosure: a process-oriented framework.
Kathryn Cantrell1, Nehali Patel, Belinda Mandrell
1Child Life Program, St. Jude Children's Research Hospital, Memphis, TN, USA. kathryn.cantrell@gmail.com
Caregivers can now use a new framework to disclose human immunodeficiency virus (HIV) status to children. This guide ensures disclosure aligns with a child's cognitive development, promoting understanding and acceptance.
Area of Science:
- Pediatrics
- Psychology
- Infectious Diseases
Background:
- Vertically transmitted human immunodeficiency virus (HIV) infection presents unique challenges for pediatric patients and their caregivers.
- Disclosure of HIV status to children is crucial but lacks standardized guidance, causing caregiver stress.
- Existing frameworks for HIV disclosure are limited, necessitating a structured approach.
Purpose of the Study:
- To propose a process-oriented, educational framework for disclosing HIV status to children and adolescents.
- To integrate Piaget's cognitive development theory into the HIV disclosure process.
- To provide a replicable model for healthcare providers to guide families through disclosure.
Main Methods:
- Development of a 10-stage sequential disclosure framework.
- Inclusion of three assessment stages to gauge developmental readiness.
- Integration of cognitive development principles to tailor disclosure content.
Main Results:
- A structured, stage-based framework for HIV disclosure in pediatric populations.
- Emphasis on assessing child's developmental stage for effective communication.
- A practical tool for healthcare providers to facilitate understanding of HIV status.
Conclusions:
- The proposed framework offers a systematic approach to HIV status disclosure for children and adolescents.
- This model supports caregivers and healthcare providers in navigating sensitive conversations.
- Implementing this framework can enhance a child's comprehension and adjustment to living with HIV.
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