Pediatric HIV disclosure: a process-oriented framework

Kathryn Cantrell1, Nehali Patel, Belinda Mandrell

  • 1Child Life Program, St. Jude Children's Research Hospital, Memphis, TN, USA. kathryn.cantrell@gmail.com

Insights

Caregivers can now use a new framework to disclose human immunodeficiency virus (HIV) status to children. This guide ensures disclosure aligns with a child's cognitive development, promoting understanding and acceptance.

Area of Science:

  • Pediatrics
  • Psychology
  • Infectious Diseases

Background:

  • Vertically transmitted human immunodeficiency virus (HIV) infection presents unique challenges for pediatric patients and their caregivers.
  • Disclosure of HIV status to children is crucial but lacks standardized guidance, causing caregiver stress.
  • Existing frameworks for HIV disclosure are limited, necessitating a structured approach.

Purpose of the Study:

  • To propose a process-oriented, educational framework for disclosing HIV status to children and adolescents.
  • To integrate Piaget's cognitive development theory into the HIV disclosure process.
  • To provide a replicable model for healthcare providers to guide families through disclosure.

Main Methods:

  • Development of a 10-stage sequential disclosure framework.
  • Inclusion of three assessment stages to gauge developmental readiness.
  • Integration of cognitive development principles to tailor disclosure content.

Main Results:

  • A structured, stage-based framework for HIV disclosure in pediatric populations.
  • Emphasis on assessing child's developmental stage for effective communication.
  • A practical tool for healthcare providers to facilitate understanding of HIV status.

Conclusions:

  • The proposed framework offers a systematic approach to HIV status disclosure for children and adolescents.
  • This model supports caregivers and healthcare providers in navigating sensitive conversations.
  • Implementing this framework can enhance a child's comprehension and adjustment to living with HIV.

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