Patients as collaborators: using focus groups and feedback sessions to develop an interactive, web-based
Sarah K Moore1, Honoria Guarino, Michelle C Acosta
1National Development and Research Institutes, New York, New York, USA.
Pain Medicine (Malden, Mass.)
|July 18, 2013
Summary
This study developed a web-based self-management program for chronic pain patients on opioids. Patient feedback confirmed the tool
Area of Science:
- Pain Management
- Digital Health Interventions
- Behavioral Science
Background:
- Chronic pain affects millions, often requiring long-term opioid therapy.
- Aberrant drug-related behaviors complicate pain management.
- Effective self-management strategies are crucial for improving patient outcomes.
Purpose of the Study:
- To develop an interactive, web-based self-management intervention.
- To tailor the intervention for opioid-treated chronic pain patients with aberrant drug-related behaviors.
Main Methods:
- Utilized focus groups (N=23) and individual feedback sessions (N=30) with chronic pain patients.
- Thematic analysis of focus group transcripts and summary statistics of feedback data were employed.
- Assessed program content, structure, acceptability, ease of use, and usefulness.
Main Results:
- Patients emphasized the need for diverse pain management strategies.
- Key themes included opioid ambivalence, mind-body connections, recognizing limitations, and goal setting.
- Participants found the web-based tool acceptable and useful, increasing their knowledge of self-management.
Conclusions:
- Web-based self-management interventions show promise for chronic pain patients.
- Patient involvement in development enhances intervention acceptability and usefulness.
- This approach can improve self-management for opioid-treated patients with complex needs.
Related Concept Videos
01:29Chronic Pancreatitis II: Collaborative Care
The management of chronic pancreatitis is multifaceted, involving a comprehensive approach that includes thorough assessment, diagnostic testing, and a variety of management strategies.
Assessment:
Assessment:
01:27Peripheral Artery Disease III: Interprofessional Care
Peripheral Artery Disease (PAD) is characterized by narrowed arteries that diminish blood flow to the extremities. Effective management of PAD requires an interprofessional approach involving various healthcare professionals. The critical aspects of interprofessional care for PAD patients focus on risk factor modification, drug therapy, exercise therapy, nutrition therapy, critical limb ischemia care, and interventional radiology and surgical procedures.The primary treatment goal for PAD...
01:13Patient-centered Care
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...