PPADS: Physician-PArent Decision-Support for Neonatal Intensive Care

Monique Frize1, Erika Bariciak, Jeff Gilchrist

  • 1Systems and Computer Engineering, Carleton University, Ottawa, Canada.

Insights

The Physician Parent Decision Support System (PPADS) aids Neonatal Intensive Care Unit (NICU) communication. Usability studies show parents and physicians find PPADS easy to use and helpful for infant care decisions.

Area of Science:

  • Neonatal care
  • Medical informatics
  • Clinical decision support

Background:

  • Family-centered care is the emerging standard for Neonatal Intensive Care Units (NICUs).
  • Effective communication and shared decision-making are crucial for infants in the NICU.
  • Parents require support in making complex care decisions for their critically ill infants.

Purpose of the Study:

  • To develop and evaluate the Physician Parent Decision Support System (PPADS).
  • PPADS aims to enhance clinical updates and outcome predictions for NICU infants.
  • The system supports parents and neonatologists in shared decision-making regarding infant care.

Main Methods:

  • A usability study was conducted with 8 parents of surviving NICU infants and 5 neonatologists.
  • Participants evaluated the ease of use, utility, and impact on team communication of the PPADS tool.
  • Future studies include parents of infants who died in the NICU and a randomized prospective trial.

Main Results:

  • Both parents and neonatologists found the PPADS tool easy to use.
  • Participants considered PPADS useful for improving team communication.
  • The system is perceived to aid in decision-making for infant care in the NICU.

Conclusions:

  • The PPADS tool shows promise in supporting family-centered care in the NICU.
  • Usability testing indicates positive reception from both parents and physicians.
  • PPADS may facilitate earlier intervention, optimize resource allocation, and reduce adverse outcomes for NICU patients.

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