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PPADS: Physician-PArent Decision-Support for Neonatal Intensive Care
Monique Frize1, Erika Bariciak, Jeff Gilchrist
1Systems and Computer Engineering, Carleton University, Ottawa, Canada.
Insights
The Physician Parent Decision Support System (PPADS) aids Neonatal Intensive Care Unit (NICU) communication. Usability studies show parents and physicians find PPADS easy to use and helpful for infant care decisions.
Area of Science:
- Neonatal care
- Medical informatics
- Clinical decision support
Background:
- Family-centered care is the emerging standard for Neonatal Intensive Care Units (NICUs).
- Effective communication and shared decision-making are crucial for infants in the NICU.
- Parents require support in making complex care decisions for their critically ill infants.
Purpose of the Study:
- To develop and evaluate the Physician Parent Decision Support System (PPADS).
- PPADS aims to enhance clinical updates and outcome predictions for NICU infants.
- The system supports parents and neonatologists in shared decision-making regarding infant care.
Main Methods:
- A usability study was conducted with 8 parents of surviving NICU infants and 5 neonatologists.
- Participants evaluated the ease of use, utility, and impact on team communication of the PPADS tool.
- Future studies include parents of infants who died in the NICU and a randomized prospective trial.
Main Results:
- Both parents and neonatologists found the PPADS tool easy to use.
- Participants considered PPADS useful for improving team communication.
- The system is perceived to aid in decision-making for infant care in the NICU.
Conclusions:
- The PPADS tool shows promise in supporting family-centered care in the NICU.
- Usability testing indicates positive reception from both parents and physicians.
- PPADS may facilitate earlier intervention, optimize resource allocation, and reduce adverse outcomes for NICU patients.
Abstract:
Family-centered care is becoming the new standard for Neonatal Intensive Care Unit (NICU) patients. In support of this, we developed the Physician PArent Decision Support System (PPADS), which provides clinical updates and predictions of clinical outcomes for infants in the NICU to the neonatologists, and provides an aid to parents for making difficult decisions on the direction of care of their infant with the health care team. The tool may lead to earlier intervention, better allocation of resources, and reduction of the negative outcomes. The tool underwent a usability study with 8 parents whose infant survived the NICU stay and 5 neonatologists. Both parents and physicians thought the tool was easy to use, useful, and would help improve team communication. The next usability study will be with parents whose infant died while in the NICU, and then conduct a randomized prospective study with parents who have a sick infant admitted to the NICU.
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