Correlations between functional performance, health-related quality of life, and parental impact on children with

Ru-Lan Hsieh1, Ming-I Lin, Hsiao-Yuan Huang

  • 1Department of Physical Medicine and Rehabilitation, Shin Kong Wu Ho-Su Memorial Hospital , Taipei , Taiwan.

Insights

Children with developmental delays who function better have improved quality of life (QOL) for themselves and their parents, with less family impact. This highlights the importance of functional improvement in managing childhood developmental delays.

Area of Science:

  • Pediatric Psychology
  • Developmental Pediatrics
  • Family Studies

Background:

  • Developmental delays in children significantly impact family dynamics and well-being.
  • Understanding the interplay between child function, quality of life (QOL), and parental factors is crucial for effective intervention.

Purpose of the Study:

  • To investigate the correlations between functional performance, QOL, and parental impact in children with developmental delays.
  • To compare these factors in children with developmental delays and typically developing children.

Main Methods:

  • Sixty parents of children with developmental delays and 56 parents of typically developing children participated.
  • Validated instruments assessed child function (Pediatric Outcomes Data Collection Instrument, Child Health Questionnaire), child and parent QOL (World Health Organization-QOL), family impact (Impact on Family Scale), and parental emotional state (Hospital Anxiety and Depression Scale).

Main Results:

  • Child functional performance positively correlated with physical QOL in children (0.7-0.9) and parental QOL (0.3-0.4).
  • Higher child function was associated with older children (0.3-0.4), maternal employment (0.3-0.4), and negatively with family impact (-0.3 to -0.5) and parental emotion (-0.3 to -0.4).

Conclusions:

  • Improved functional levels in children with developmental delays are linked to enhanced QOL for both the child and their parents.
  • Higher child function is associated with reduced negative impact on the family and improved parental emotional well-being.
Abstract

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