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Research involving participants with chronic diseases: overcoming recruitment obstacles
Wendy R Miller1, Tamilyn Bakas, Janice M Buelow
1Author Affiliations: Assistant Professor, Department of Adult Health (Dr Miller); Professor, Department of Adult Health (Dr Bakas); Associate Professor, Department of Adult Health (Dr Buelow); Associate Professor, Department of Family Health (Dr Habermann), Indiana University School of Nursing, Indianapolis.
Insights
Recruiting participants for chronic disease research is challenging. This study details an effective alternative recruitment strategy for behavioral studies involving individuals with chronic conditions like epilepsy.
Area of Science:
- Public Health
- Behavioral Science
- Clinical Research
Background:
- Chronic diseases represent a significant burden on healthcare systems in the United States.
- Effective interventions for chronic diseases require robust research involving affected populations.
- Participant recruitment is a critical yet often challenging aspect of conducting such research.
Purpose of the Study:
- To review common recruitment challenges in behavioral studies involving chronic disease populations.
- To present a detailed account of a successful alternative recruitment strategy.
- To provide insights for researchers seeking to improve participant recruitment in chronic disease studies.
Main Methods:
- A review of common recruitment barriers in chronic disease research.
- Detailed description of an alternative recruitment strategy implemented in a qualitative study.
- Focus on a study involving individuals with epilepsy.
Main Results:
- Participant recruitment for chronic disease studies faces numerous documented difficulties.
- The discussed alternative strategy proved highly effective in recruiting participants for a qualitative epilepsy study.
- This approach offers a viable solution to common recruitment obstacles.
Conclusions:
- Overcoming recruitment challenges is essential for advancing research on chronic disease prevention and management.
- Alternative recruitment strategies can significantly enhance the success of studies involving individuals with chronic conditions.
- The presented methodology offers valuable guidance for future research endeavors in this field.
Abstract:
Chronic diseases are rampant in the United States and account for the majority of healthcare costs in this country. The implementation of research studies involving members of chronic disease populations is necessary to the development of interventions aimed at preventing these conditions and improving outcomes. The implementation of such studies hinges on the successful recruitment of an adequate number of study participants. Difficulties surrounding participant recruitment in behavioral studies are well documented and present a barrier to researchers aiming to conduct research involving persons with chronic diseases. Common recruitment challenges associated with recruiting chronic disease participants are reviewed, and a highly effective, alternative recruitment strategy used by the authors in a qualitative study involving persons with epilepsy is discussed in detail.
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