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Creating research capacity through a tribally based institutional review board
Deborah J Morton1, Joely Proudfit, Daniel Calac
1Deborah J. Morton and Joely Proudfit are with the California Indian Culture and Sovereignty Center, California State University, San Marcos. Daniel Calac, Martina Portillo, and Romelle Majel-McCauley are with Indian Health Council Inc, Pauma Valley, CA. Geneva Lofton-Fitzsimmons, Theda Molina, Raymond Flores, and Barbara Lawson-Risso are Luiseño tribal community leaders.
American Journal of Public Health
|October 19, 2013
Summary
Tribally based Institutional Review Boards (IRBs) assert tribal sovereignty by controlling health research, fostering trust, and enabling bidirectional cultural education between researchers and tribal communities.
Area of Science:
- Public Health
- Indigenous Studies
- Bioethics
Background:
- Tribal sovereignty encompasses authority over land, people, businesses, and health.
- Historical health science research by outsiders has often been unethical and exploitative.
- Tribal groups are actively working to uphold their rights and protect their communities.
Purpose of the Study:
- To describe the establishment and success of a tribally based Institutional Review Board (IRB).
- To highlight how tribally controlled IRBs can enhance health research capacity.
- To demonstrate the improvement of trust and cultural understanding in research collaborations.
Main Methods:
- Establishment of a tribally governed Institutional Review Board (IRB).
- Development of a framework for tribally controlled health science research.
- Facilitation of bidirectional cultural education between academic researchers and tribal IRB members.
Main Results:
- The tribally based IRB successfully created new capacity for health research.
- Enhanced levels of trust were observed between academic researchers and the tribal IRB.
- Bidirectional cultural education fostered mutual understanding and respect.
Conclusions:
- Tribally based IRBs are effective in asserting sovereignty and protecting community interests in health research.
- These IRBs enhance research capacity and build crucial trust with academic institutions.
- Empowering tribal communities to lead their own research agendas is vital for ethical and effective public health initiatives.
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