Public opinion on policy issues in genetics and genomics

Area of Science:

• Genetics and Genomics
• Public Health Policy

Background:

• Public opinion shapes policy development in emerging scientific fields.
• Understanding public perception of genetics is crucial for informed policymaking.

Purpose of the Study:

• To gauge public opinion on key genetics and genomics policy issues.
• To assess views on federal genetic research funding, the Genetic Information Nondiscrimination Act of 2008 (GINA), and clinician involvement in direct-to-consumer genetic testing.

Main Methods:

• A nationally representative survey of 2,100 American adults.
• Data collected by YouGov in January 2011.

Main Results:

• 57% favored increased federal spending on genetic research.
• 82% considered the Genetic Information Nondiscrimination Act of 2008 "important".
• 65% supported clinician involvement in explaining genetic test results.

Conclusions:

• Broad public support exists for genetic research, anti-discrimination laws, and professional guidance in genetic testing.
• Findings inform scientists, clinicians, professional organizations, federal agencies, and legislators.