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Updated: May 5, 2026

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
Published on: July 31, 2017
Improving management of patients with autism spectrum disorder having scheduled surgery: optimizing practice
Insights
This study improved surgical preparation for children with autism spectrum disorder (ASD) by identifying individual needs and stressors. The project enhanced the perioperative experience for autistic children and their families, increasing staff awareness.
Area of Science:
- Pediatric Surgery
- Autism Spectrum Disorder (ASD) Research
- Healthcare Quality Improvement
Background:
- Children with autism spectrum disorder (ASD) often face challenges in hospital settings due to their need for predictability and routine.
- Hospital environments can be stressful for autistic children, impacting their surgical preparation and overall experience.
- Optimizing perioperative care for autistic children requires individualized approaches to address unique needs and behaviors.
Purpose of the Study:
- To optimize best practices for perioperative staff caring for children with ASD.
- To individualize the plan of care for autistic children and their families undergoing surgery.
- To improve the surgical preparation and experience for pediatric patients with autism.
Main Methods:
- A prospective, descriptive quality improvement project was conducted over 6 months.
- Forty-three pediatric patients diagnosed with ASD scheduled for surgery were included.
- Caregiver interviews were conducted pre- and post-surgery to gather insights for improving care.
Main Results:
- Staff successfully identified potential and actual stressors for surgical patients with ASD.
- Qualitative coding of interview data revealed themes to enhance the perioperative process.
- Data indicated an improvement in recognizing and addressing the individual needs of autistic children.
Conclusions:
- The project successfully enhanced the surgical experience for children with autism.
- Families reported satisfaction with the individualized attention and focus on their child's specific needs.
- Increased staff interest in optimizing surgical care for autistic children was observed.
Introduction:
Surgical preparation for children with autism spectrum disorders can be a challenge to perioperative staff because of the unique individual needs and behaviors in this population. Most children with autism function best in predictable, routine environments, and being in the hospital and other health care settings can create a stressful situation. This prospective, descriptive, quality improvement project was conducted to optimize best practices for perioperative staff and better individualize the plan of care for the autistic child and his or her family.
Methods:
Forty-three patients with a diagnosis of autism or autistic spectrum disorder were seen over 6 months at a suburban pediatric hospital affiliated with a major urban pediatric hospital and had an upcoming scheduled surgery or procedure requiring anesthesia. Caregivers were interviewed before and after surgery to collect information to better help their child cope with their hospital visit.
Results:
In an evaluation of project outcomes, data were tabulated and summarized and interview data were qualitatively coded for emerging themes to improve the perioperative process for the child.
Discussion:
Findings showed that staff members were able to recognize potential and actual stressors and help identify individual needs of surgical patients with autism. The families were pleased and appreciative of the individual attention and focus on their child's special needs. Investigators also found increased staff interest in optimizing the surgical experience for autistic children.
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