Functioning and disability after stroke in children: using the ICF-CY to classify health outcome and inform future

Anne L Gordon1

  • 1Paediatric Neurosciences Department, Evelina London Children's Hospital, Guy's & St Thomas' Hospital NHS Foundation Trust, Kings Health Partners, London, UK; Clinical Sciences Theme, Murdoch Childrens Research Institute, Melbourne, Vic., Australia.

Insights

This study reviewed pediatric arterial ischemic stroke (AIS) outcomes using the ICF-CY framework. Most studies focused on body functions, with limited exploration of environmental factors and participation restrictions.

Area of Science:

  • Rehabilitation Medicine
  • Pediatric Neurology
  • Health Services Research

Background:

  • The International Classification of Functioning Disability and Health, Child-Youth version (ICF-CY) offers a comprehensive framework for health and disability assessment.
  • The ICF-CY can be utilized to classify the focus of outcome studies and identify knowledge gaps in pediatric populations.

Purpose of the Study:

  • To systematically review and classify the focus of outcome studies in pediatric arterial ischemic stroke (AIS) using the ICF-CY framework.
  • To identify gaps in current knowledge regarding functioning and disability in children with AIS.

Main Methods:

  • A systematic literature search was conducted across multiple databases targeting outcome studies in pediatric AIS.
  • Findings from 28 identified studies were systematically rated and classified according to the ICF-CY framework.
  • The focus of outcome measures, study designs, and participant demographics were analyzed.

Main Results:

  • Twenty-eight studies were included, predominantly cross-sectional, with wide age ranges at assessment.
  • Sixty-seven standardized measures were used, primarily assessing body functions.
  • Commonly reported domains of activity and participation included learning, general tasks, and self-care; health-related quality of life was assessed in nine studies.
  • Environmental factors were infrequently evaluated.

Conclusions:

  • Recent AIS outcome studies increasingly address the link between body structures/functions and activities, participation, and quality of life.
  • Heterogeneity in study design and outcome measures complicates cross-study comparisons.
  • The relationship between activity limitations and participation restrictions remains underexplored in pediatric AIS research.
Abstract