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Blame, shame and hopelessness: medically unexplained symptoms and the 'heartsink' experience
1MBBS, BA, MPH, DipRACOG, FRACGP, FACRRM, PhD candidate, Values, Ethics and the Law in Medicine, University of Sydney; and Senior Medical Advisor, GPET, NSW.
Insights
Managing patients with medically unexplained symptoms (MUS) is challenging for both doctors and patients. Validating patient suffering and providing empathic care are key strategies for effective treatment.
Area of Science:
- Medical Humanities
- Psychosomatic Medicine
- Clinical Psychology
Background:
- Medically unexplained symptoms (MUS) pose significant challenges in clinical practice.
- Patients with MUS often experience distress without a clear diagnostic narrative.
- 'Heartsink' phenomenon describes the negative emotional responses clinicians may have towards these patients.
Observation:
- Patients with MUS struggle to find social legitimacy and validation for their suffering.
- A lack of diagnosis can lead to feelings of worthlessness, shame, and self-blame in patients.
- Patients with a history of abuse are particularly vulnerable to these negative experiences.
Findings:
- Consultations for MUS frequently involve mutual feelings of frustration and helplessness.
- Effective management requires validating the patient's suffering and distress.
- Developing appropriate explanations for symptoms and providing empathic care are crucial.
Implications:
- Careful management can minimize the risk of iatrogenic harm.
- Addressing the psychosocial aspects of MUS is essential for patient well-being.
- Improved understanding and strategies can enhance the therapeutic relationship in managing MUS.
Background:
'Heartsink' patients present a moral dilemma. We recognise their suffering, but at the same time struggle with the feelings they trigger in us. Patients also experience negative feelings. Without a diagnosis they lack a narrative or vocabulary to make sense of their own suffering.
Objective:
This article explores some of the challenges faced and strategies utilised when managing patients with medically unexplained symptoms.
Discussion:
Doctors and patients often experience frustration and helplessness in consultations around medically unexplained symptoms. Without a diagnosis, patients lack social legitimacy as 'sick' people with 'real' illnesses. They often describe feeling blamed for their own distress. Because of this, they can experience deep feelings of worthlessness and shame. Patients with a history of abuse can be particularly vulnerable. Management includes validating their suffering, helping them construct appropriate explanations for their distress and providing empathic interpersonal care, while minimising the risk of iatrogenic harm.
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