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Updated: Apr 30, 2026

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
Web-based tracking methods in longitudinal studies
Izaak L Williams1, Clifford R O'Donnell2
1University of Hawai'i, 651 Ilalo St, John A. Burns School of Medicine, Department of Cell and Molecular Biology, BSB Building, Honolulu, HI 96813, USA.
Abstract:
The use of online resources to reduce the attrition of program participants in longitudinal studies is examined. Higher-risk individuals, those involved in illegal activities, and females with last name changes are typically more difficult to locate. The effectiveness of using online resources for these participants is addressed. These resources include social networking sites, people-finder search engines, telephone and address directories, judicial records, and death records. The strengths and limitations of these resources are presented and discussed. Longitudinal studies using these resources are examined to evaluate their successful follow-up rates. The results of these studies indicate that participant characteristics are more important to successful follow-up than the length of time since participation or sample size. The use of multiple online sites increased follow-up rates, especially for those who are typically difficult to locate. The variables and websites to consider are discussed, and six lessons learned are offered. The prospective use of online participant involvement is especially important for successful longitudinal evaluation and program planning.
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