Capturing experiences of patients living with COPD

Area of Science:

• Respiratory Medicine
• Health Services Research

Background:

• Chronic obstructive pulmonary disease (COPD) prevalence and incidence are increasing globally.
• Patient-reported outcome and quality of life measures exist for COPD.
• There is a lack of a specific patient-reported experience measure for COPD.

Purpose of the Study:

• To describe the development of a COPD-specific patient-reported experience measure.
• To address the gap in assessing patient experiences in COPD care.

Main Methods:

• The article outlines the stages involved in developing a new measurement tool.
• Methodology likely includes item generation, validation, and piloting (details to be elaborated in the full study).

Main Results:

• The development process for a COPD-specific patient-reported experience measure is detailed.
• This work aims to provide a tool for evaluating patient experiences in COPD.

Conclusions:

• A COPD-specific patient-reported experience measure is under development.
• This measure will be crucial for understanding and improving patient care in COPD.