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Updated: Apr 29, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Patients' and citizens' points of view
1Istituto Superiore di Sanità (Italian National Institute of Health) , Rome, Italy .
Abstract:
In this article, the first section introduces general considerations on the opinions of patients and the public regarding biobanks. The notion of "public opinion" is briefly described and discussed in a historical perspective. The second section illustrates the results of some surveys carried out in the United States and Europe regarding biobanks. Finally, patients' and citizens' opinions on the storage and use of biological samples are discussed within an ethical framework of principles and values. Four main aspects are discussed: willingness to participate in research; preferences and the perception of norms; language; and opportunities and limits of deliberative democracy in political decisions about biobanking.
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