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Public perception towards biobanking in jordan.
Mamoun Ahram1, Areej Othman, Manal Shahrouri
11 Department of Physiology and Biochemistry, Faculty of Medicine, University of Jordan , Amman, Jordan .
Biopreservation and Biobanking
|May 23, 2014
Summary
Public participation in biobanking is crucial for biomedical research. A survey in Jordan found 80% approval for biospecimen use, with younger, more educated individuals more willing to donate samples and data.
Area of Science:
- Biomedical Research
- Biobanking
- Public Health
Background:
- Ethnic diversity is vital for understanding disease susceptibility and drug response.
- Public involvement in biomedical research, particularly through biospecimen donation, is essential.
- Biobanks are key infrastructure for collecting, storing, and disseminating biospecimens and associated data.
Purpose of the Study:
- To assess public knowledge and attitudes towards biospecimen-based research and biobanking in Jordan.
- To determine the willingness of the Jordanian population to participate in biobanking initiatives.
- To identify demographic factors influencing public participation in biobanking.
Main Methods:
- A structured, national-level questionnaire was administered to 3196 individuals aged 18 and above.
- The sample represented a cross-section of the Jordanian population.
- Data collected included demographics (age, gender, education) and attitudes towards biospecimen research and biobanking.
Main Results:
- Despite limited knowledge of the term 'biological samples,' 80% of respondents approved biospecimen use in research.
- Approximately two-thirds of participants agreed to donate biospecimens and associated personal/medical information.
- Willingness to participate in biobanking correlated positively with younger age and higher education levels, irrespective of gender.
Conclusions:
- The Jordanian public demonstrates a high level of acceptance for biospecimen-based research and biobanking.
- Public education on the importance of research and biobanking is critical to foster participation.
- These findings provide a foundation for developing successful biobanking initiatives in Jordan and culturally similar regions.
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