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Pediatric psycho-oncology care: standards, guidelines, and consensus reports
Lori Wiener1, Adrienne Viola, Julia Koretski
1NCI/NIH, Bethesda, MD, USA.
Insights
Existing guidelines for pediatric psycho-oncology psychosocial care are insufficient. A comprehensive, evidence-based standard is needed to ensure quality care for children with cancer and their families.
Area of Science:
- Pediatric Oncology
- Psycho-Oncology
- Healthcare Standards
Background:
- Psychosocial care is crucial for children with cancer.
- Standardized care can improve outcomes and create replicable models.
- Identifying gaps in current standards is essential for developing better guidelines.
Purpose of the Study:
- To identify existing guidelines, standards, or consensus-based reports for psychosocial care of children with cancer.
- To determine gaps in current pediatric psycho-oncology standards.
Main Methods:
- Searched MEDLINE and PubMed databases for relevant literature.
- Included peer-reviewed articles published between 1980 and 2013.
- Focused on guidelines, consensus reports, and standards for pediatric cancer psychosocial care.
Main Results:
- Located 27 articles meeting inclusion criteria (5 standards, 19 guidelines, 3 consensus reports).
- None of the identified resources were sufficiently up-to-date, comprehensive, specific, or evidence-based.
- Significant gaps exist in current standards for psychosocial care in pediatric oncology.
Conclusions:
- Despite recognized need, a comprehensive, evidence-based standard for psychosocial care is lacking.
- Development of a widely acceptable standard is required to guide essential psychosocial services.
- Further research and consensus-building are necessary to establish robust standards.
Objective:
The aim of this study was to identify existing guidelines, standards, or consensus-based reports for psychosocial care of children with cancer and their families.
Purpose:
Psychosocial standards of care for children with cancer can systematize the approach to care and create a replicable model that can be utilized in pediatric hospitals around the world. Determining gaps in existing standards in pediatric psycho-oncology can guide development of useful evidence-based and consensus-based standards.
Methods:
The MEDLINE and PubMed databases were searched by investigators at two major pediatric oncology centers for existing guidelines, consensus-based reports, or standards for psychosocial care of patients with pediatric cancer and their families published in peer-reviewed journals in English between 1980 and 2013.
Results:
We located 27 articles about psychosocial care that met inclusion criteria: 5 set forth standards, 19 were guidelines, and 3 were consensus-based reports. None was sufficiently up to date, comprehensive, specific enough, or evidence- or consensus-based to serve as a current standard for psychosocial care for children with cancer and their families.
Conclusion:
Despite calls by a number of international pediatric oncology and psycho-oncology professional organizations about the urgency of addressing the psychosocial needs of the child with cancer to reduce suffering, there remains a need for development of a widely acceptable, evidence-based and consensus-based, comprehensive standard of care to guide provision of essential psychosocial services to all patients with pediatric cancer.
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