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Information-seeking and sharing behavior following genomic testing for diabetes risk
Rachel Mills1, Jill Powell, William Barry
1Duke Institute for Genome Sciences & Policy, Duke University, 304 Research Drive, Box 90141, Durham, NC, 27708, USA, r.mills@duke.edu.
Patients often seek health information online after genomic testing for type 2 diabetes risk. In-person genetic counseling significantly increased the sharing of these important T2DM risk results.
Area of Science:
- Genomic Medicine
- Health Communication
- Patient Behavior
Background:
- Patient-centered care emphasizes patient-driven health information seeking.
- The internet and social networks are primary sources for health information.
- Understanding information-seeking and sharing post-genomic testing is crucial.
Purpose of the Study:
- To assess the impact of genomic testing delivery method on type 2 diabetes risk (T2DM) information-seeking and sharing behaviors.
- To compare in-person genetic counseling versus online results delivery.
- To understand patient engagement with genomic information.
Main Methods:
- Participants received T2DM genomic test results either in-person with a genetic counselor or online.
- Information-seeking behaviors were assessed post-results delivery.
- Health-related and result-sharing behaviors were evaluated.
Main Results:
- 32.6% of participants sought additional information, with 80.8% using the internet.
- 88% shared their T2DM risk results, primarily with family.
- Sharing T2DM risk results was significantly higher (p<0.0001) when delivered in-person by a genetic counselor.
Conclusions:
- Genomic testing for T2DM risk prompts significant patient information seeking, predominantly online.
- In-person genetic counseling enhances patient sharing of genomic risk information.
- Genetic counselors play a vital role in patient education and engagement with genomic health information.
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