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Published on: September 20, 2024
Stigmatising feelings and disclosure apprehension among children with epilepsy
Veronica Lambert1, Pamela Gallagher, Stephanie O'Toole
1School of Nursing and Human Sciences, Dublin City University, Dublin, Republic of Ireland.
Abstract:
Despite worldwide campaigns to enhance public awareness, understanding and acceptability of epilepsy, stigmatising feelings remain among children with epilepsy and their families. Stigma can be internally felt by the child (shame and embarrassment) or enacted by others (discrimination). Many children with epilepsy and their parents fear disclosure of the condition and exercise a variety of disclosure or concealment strategies. Maintaining these strategies can have a negative, stressful impact on the child's social and psychosocial development and quality of life. Continuing dialogue among families, friends, teachers and health professionals should be initiated and supported.
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