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Prostate cancer support groups: Canada-based specialists' perspectives.

John L Oliffe1, Suzanne Chambers2, Bernie Garrett3

  • 1University of British Columbia, Vancouver, British Columbia, Canada john.oliffe@nursing.ubc.ca.

American Journal of Men'S Health
|July 26, 2014
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Summary

Prostate cancer specialists highly value prostate cancer support groups (PCSGs) for information and psychosocial support. They recommend improving marketing and addressing barriers like inclusivity and privacy to enhance engagement.

Keywords:
prostate cancerprostate cancer support groupsspecialists’ view

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Area of Science:

  • Oncology
  • Patient Support Services
  • Health Services Research

Background:

  • Prostate cancer support groups (PCSGs) offer valuable resources for patients.
  • Understanding specialists' perspectives is crucial for optimizing support services.

Purpose of the Study:

  • To assess Canadian prostate cancer specialists' views on the benefits and challenges of PCSGs.
  • To identify factors influencing the effectiveness and engagement with PCSGs.

Main Methods:

  • A survey of 150 Canadian prostate cancer specialists (urologists, radiation oncologists, medical oncologists) was conducted.
  • A 56-item questionnaire measured attitudes towards PCSGs, including influences, attendance reasons, effectiveness attributes, and delivery modes (face-to-face vs. web-based).
  • An open-ended question allowed for additional participant input.

Main Results:

  • PCSGs are positively valued by specialists, primarily for information sharing, education, and psychosocial support.
  • Key benefits identified include information provision and an educational role, especially for face-to-face PCSGs.
  • Potential barriers such as inclusivity, privacy, and accessibility were noted, with recommendations for improved marketing.

Conclusions:

  • Prostate cancer specialists recognize the significant benefits of PCSGs, particularly face-to-face formats.
  • Concerns exist regarding the engagement and educational effectiveness of web-based PCSGs.
  • Enhancing PCSG marketing and addressing identified barriers can improve patient engagement and support outcomes.