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Computer-Aided Three-Dimensional Visualization in the Treatment of Locally Advanced Thyroid Cancer
Published on: June 9, 2023
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Completeness and validity in a national clinical thyroid cancer database: DATHYRCA
Stefano Christian Londero1, Jes Sloth Mathiesen1, Annelise Krogdahl2
1Department of ENT Head & Neck Surgery, Odense University Hospital, Denmark.
Cancer Epidemiology
|August 19, 2014
Summary
The Danish national thyroid cancer database (DATHYRCA) demonstrates high completeness and validity. This cancer registry is reliable for national thyroid carcinoma research and reporting.
Area of Science:
- Oncology
- Public Health
- Health Informatics
Background:
- The Danish national clinical thyroid cancer database (DATHYRCA) has been operational since 1996.
- No prior data quality assessment had been conducted for DATHYRCA.
Purpose of the Study:
- To evaluate the completeness of case ascertainment and registration in the DATHYRCA.
- To assess the data validity of the DATHYRCA.
Main Methods:
- A national prospective cohort study was conducted in Denmark.
- Completeness was assessed using independent case ascertainment against governmental registries.
- Validity was evaluated using the reabstracted record method on 100 randomly selected cases.
Main Results:
- DATHYRCA contains 1934 thyroid carcinoma cases.
- Case ascertainment completeness was estimated at 90.9%.
- Registration completeness exceeded 90% for most variables, with excellent inter- and intra-observer agreement on diagnoses.
Conclusions:
- National clinical cancer databases can achieve satisfactory completeness and validity.
- The DATHYRCA database is reliable for national thyroid carcinoma surveillance.
- Public health insurance and governmental databases facilitate robust cancer registry development.
Keywords:
AgreementCompletenessDatabaseEpidemiologyNational registryThyroid carcinomaValidationValidityMore Related Videos
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