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A framework for creating standardized outcome measures for patient registries.

Richard E Gliklich1, Michelle B Leavy, Jannette Karl

  • 1Harvard Medical School, Massachusetts Eye & Ear Infirmary, 243 Charles Street, Boston, MA 02114, USA.

Journal of Comparative Effectiveness Research
|October 29, 2014
PubMed
Summary

This study developed a conceptual framework and a tool for standardizing outcome measures across diverse health conditions. This approach aids in consistent data collection and evaluation of patient outcomes.

Keywords:
comparative effectiveness researchconceptual modeloutcome measureoutcome measurementpatient outcomespatient registry

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Area of Science:

  • Health Informatics
  • Outcome Measurement Science

Background:

  • Standardized outcome measures are crucial for evaluating patient health.
  • Existing outcome measures lack consistency across different health conditions.
  • Registries require robust tools for collecting and displaying outcome data.

Purpose of the Study:

  • To create a conceptual framework for developing standard outcome measures.
  • To design and pilot test a tool for displaying these outcome measures.

Main Methods:

  • Gathered information on outcome measures from stakeholder discussions.
  • Developed a conceptual framework based on stakeholder input.
  • Designed and pilot tested a tool for outcome measure display.

Main Results:

  • A conceptual outcome measurement framework was established.
  • This framework enables standardized definition and collection of patient outcome data.
  • A tool was developed to facilitate collecting, displaying, and searching outcome measures.

Conclusions:

  • The developed framework provides a standardized approach to defining outcome measures.
  • This standardization is applicable across a wide range of medical conditions.
  • The framework and tool support consistent evaluation of patient outcomes.