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A framework for creating standardized outcome measures for patient registries
Richard E Gliklich1, Michelle B Leavy, Jannette Karl
1Harvard Medical School, Massachusetts Eye & Ear Infirmary, 243 Charles Street, Boston, MA 02114, USA.
Aim:
Our objectives were to create a conceptual framework for development of standard outcome measures and to design and pilot test a tool for displaying outcome measures.
Materials & Methods:
Information on outcome measures used in registries was gathered through stakeholder discussions, which informed the development of the outcome measurement framework and the related tool.
Results:
The outcome measurement framework is a conceptual model for how information relevant to evaluating patient outcomes may be defined and collected in a standard way for a broad range of health areas. The related tool facilitates collecting, displaying and searching for information on outcome measures.
Conclusion:
The model developed through this process offers a framework that can be used to define outcome measures in a standard way across medical conditions.
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