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Disaggregated data and beyond: future queries in cancer control research
Anh Bao Nguyen1, Neetu Chawla2, Anne-Michelle Noone2
1Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, Maryland. Anh.Nguyen3@nih.gov.
Collecting disaggregated cancer data for Asian American (AA) and Native Hawaiian and Other Pacific Islander (NHOPI) communities is crucial for health equity. Findings highlight the need for targeted cancer prevention and control strategies for these populations.
Area of Science:
- Public Health
- Health Equity
- Cancer Epidemiology
Background:
- Health equity necessitates disaggregated data collection for underrepresented groups like Asian Americans (AA) and Native Hawaiians and Other Pacific Islanders (NHOPI).
- A Department of Health and Human Services report emphasizes the need for disaggregated data to improve health problem addressing.
- Historical and sociocultural factors, including the model minority myth, influence health outcomes in AA and NHOPI subgroups.
Purpose of the Study:
- To provide context on factors affecting AA and NHOPI health.
- To propose research and public health policy strategies using subpopulation-based approaches.
- To analyze current National Cancer Institute (NCI) funded projects to identify research gaps.
Main Methods:
- Utilized data from the NCI's Surveillance, Epidemiology, and End Results (SEER) program to track cancer incidence.
- Reviewed historical and sociocultural factors impacting AA and NHOPI health.
- Conducted a portfolio analysis of NCI/DCCPS funded projects.
Main Results:
- Cancer incidence data for AA and NHOPI communities reveal a need for focused cancer prevention and control.
- Identified challenges and limitations in current research and policy approaches.
- Highlighted gaps and areas for potential research in NCI/DCCPS funding.
Conclusions:
- Disaggregated data are essential for advancing health equity in AA and NHOPI populations.
- Subpopulation-based strategies are needed for effective cancer prevention and control.
- Further research and targeted funding are required to address cancer disparities in these communities.
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