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Parent-Reported Family Functioning Among Children With Cleft Lip/Palate
Summary
Family functioning in youth with cleft lip/palate (CL/P) is generally average. However, race, ethnicity, insurance, and surgery type influence family dynamics, impacting cohesion, expressiveness, and conflict.
Area of Science:
- Pediatric Health
- Family Psychology
- Craniofacial Anomalies
Background:
- Cleft lip and/or palate (CL/P) significantly impacts children and their families.
- Understanding family functioning is crucial for comprehensive care in CL/P management.
- Sociodemographic and clinical factors may influence family dynamics in this population.
Purpose of the Study:
- To investigate the relationship between sociodemographic and clinical characteristics and family functioning in youth with CL/P.
- To identify specific factors that may predict variations in family cohesion, expressiveness, and conflict.
Main Methods:
- Cross-sectional, multi-site study involving 1200 children with CL/P and their parents.
- Utilized the Family Environment Scale (FES) to assess family functioning domains.
- Collected demographic (race, ethnicity, insurance) and clinical (surgical recommendations) data.
Main Results:
- Family functioning scores were within the average range compared to normative data.
- Families of children recommended for functional surgery reported higher cohesion and expressiveness than those recommended for aesthetic surgery.
- Significant differences in cohesion and expressiveness were observed based on race, ethnicity, and type of insurance.
Conclusions:
- Family functioning in youth with CL/P is generally within average ranges.
- Clinical management should consider sociodemographic factors like race, ethnicity, and insurance type, as well as surgical recommendations, to support families.
- Tailored support may be beneficial for families facing specific challenges related to CL/P care.
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