Constructing High-stakes Surgical Decisions: It's Better to Die Trying
Michael J Nabozny1, Jacqueline M Kruser, Nicole M Steffens
1*Department of Surgery, University of Wisconsin-Madison, Madison, WI †Department of Medicine, Northwestern University, Chicago, IL ‡Department of Surgery, Oregon Health & Science University, Portland, OR §Department of Medicine, University of Wisconsin-Madison, Madison, WI ¶Center for Patient Partnerships, University of Wisconsin-Madison, Madison, WI ||Department of Medical History and Bioethics, University of Wisconsin-Madison, Madison, WI.
Objective:
To explore high-stakes surgical decision making from the perspective of seniors and surgeons.
Background:
A majority of older chronically ill patients would decline a low-risk procedure if the outcome was severe functional impairment. However, 25% of Medicare beneficiaries have surgery in their last 3 months of life, which may be inconsistent with their preferences. How patients make decisions to have surgery may contribute to this problem of unwanted care.
Methods:
We convened 4 focus groups at senior centers and 2 groups of surgeons in Madison and Milwaukee, Wisconsin, where we showed a video about a decision regarding a choice between surgery and palliative care. We used qualitative content analysis to identify themes about communication and explanatory models for end-of-life treatment decisions.
Results:
Seniors (n = 37) and surgeons (n = 17) agreed that maximizing quality of life should guide treatment decisions for older patients. However, when faced with an acute choice between surgery and palliative care, seniors viewed this either as a choice between life and death or a decision about how to die. Although surgeons agreed that very frail patients should not have surgery, they held conflicting views about presenting treatment options.
Conclusions:
Seniors and surgeons highly value quality of life, but this notion is difficult to incorporate in acute surgical decisions. Some seniors use these values to consider a choice between surgery and palliative care, whereas others view this as a simple choice between life and death. Surgeons acknowledge challenges framing decisions and describe a clinical momentum that promotes surgical intervention.
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