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Caregiver Preferences Regarding Personal Health Records in the Management of ADHD
Sarah D Ronis1, Constance D Baldwin2, Scott McIntosh2
1University of Rochester School of Medicine and Dentistry, Rochester, NY, USA sarah.ronis@uhhospitals.org.
Insights
Parents are enthusiastic about using personal health records (PHRs) for their children with attention deficit hyperactivity disorder (ADHD). Engaging parents as partners in care significantly increases their intention to use PHRs for ADHD management.
Area of Science:
- Pediatric Health Informatics
- Child Psychology
- Healthcare Management
Background:
- Personal Health Records (PHRs) offer potential solutions for managing chronic conditions in children.
- Attention Deficit Hyperactivity Disorder (ADHD) presents unique care coordination challenges for families.
Purpose of the Study:
- To assess parental acceptance, identify barriers, and understand intentions regarding the use of PHRs for children diagnosed with ADHD.
- To explore factors influencing parental adoption of PHRs in pediatric ADHD care.
Main Methods:
- A survey was conducted among parents of children with ADHD across three practices in Rochester, NY.
- Stepwise logistic regression analyzed predictors of future PHR use, considering care coordination needs, caregiver education, socioeconomic status, and provider satisfaction.
Main Results:
- Of 184 parents surveyed, 23% had previously used a PHR for their child, and 82% intended to use one in the future.
- Parental engagement as partners in their child's care was a significant predictor of future PHR use (aOR=2.3).
- No significant demographic differences (gender, age, race, education) were found between PHR users and non-users.
Conclusions:
- Parents demonstrate significant enthusiasm for utilizing PHRs for their children with ADHD.
- Future initiatives should prioritize fostering parental engagement within the healthcare team to enhance PHR adoption.
Objective:
Personal health records (PHRs) may address the needs of children with attention deficit hyperactivity disorder. Among parents, we assessed acceptance, barriers, and intentions regarding use of PHR for their children with attention deficit hyperactivity disorder.
Methods:
Survey of parents from 3 practices in Rochester, NY. Stepwise logistic regression analysis explored factors predicting respondents' intentions for future use of PHR, accounting for care coordination needs, caregiver education, socioeconomic status, and satisfaction with providers.
Results:
Of 184 respondents, 23% had used the PHR for their child, 82% intended future use. No difference was observed between users and nonusers regarding gender, age, race, or education. Users were more likely than nonusers to reside in the suburbs (P = .03). Caregivers were more likely to plan future use of the PHR if they felt engaged as partners in their child's care (adjusted odds ratio = 2.3, 95% confidence interval = 1.2, 4.5).
Conclusions:
Parents are enthusiastic about PHRs. Future work should focus on engaging them as members of the health care team.
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