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Chronic kidney disease (CKD) requires collaborative and comprehensive management. CKD progresses through stages and can lead to end-stage kidney disease (ESKD) if untreated. Interprofessional collaboration and patient education are crucial, enabling patients to manage their health and improve their quality of life.Diagnostic approach for chronic kidney diseaseThe diagnosis of CKD primarily focuses on the glomerular filtration rate (GFR), which assesses kidney function by measuring how well...
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Accurate diagnosis and effective prevention are critical in managing Acute Kidney Injury (AKI), which is linked to high mortality rates ranging from 10% to 80%. Timely recognition of at-risk patients and careful monitoring can significantly reduce the likelihood of kidney damage.Diagnostic Assessments:The diagnostic process starts with a comprehensive medical history to identify prerenal, intrarenal, and postrenal causes.Prerenal causes, such as dehydration, hypotension, or blood loss, should...
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Research priority setting in kidney disease: a systematic review.

Allison Tong1, Shingisai Chando1, Sally Crowe2

  • 1Sydney School of Public Health, University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia.

American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation
|January 14, 2015
PubMed
Summary

Limited patient involvement is common in kidney disease research prioritization. Engaging patients, caregivers, and providers in transparent processes is crucial for effective kidney disease research funding.

Keywords:
Chronic kidney disease (CKD)acute kidney injury (AKI)dialysisepidemiology and outcomesfunding body strategykidney diseasepatient-centered researchpriority settingrenal failureresearch agendaresearch priorities

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Area of Science:

  • Nephrology Research
  • Health Services Research
  • Patient-Centered Outcomes

Background:

  • Research funding allocation requires difficult choices due to limited resources.
  • A growing emphasis on patient-centered research necessitates evaluating current prioritization methods.
  • Understanding research priorities in kidney disease is essential for effective resource allocation.

Purpose of the Study:

  • To evaluate approaches to research prioritization in kidney disease.
  • To describe the research priorities of patients, caregivers, healthcare providers, and policymakers.
  • To identify gaps in patient and stakeholder involvement in kidney disease research prioritization.

Main Methods:

  • A systematic review of studies was conducted.
  • Searches included MEDLINE, EMBASE, PsycINFO, and CINAHL up to May 2014.
  • Descriptive synthesis was used to analyze included studies.

Main Results:

  • 16 studies (n=2,365) from high-income countries were identified.
  • Only 25% of studies explicitly involved patients.
  • Key research priorities included acute kidney injury prevention, chronic kidney disease progression, fluid/diet restrictions, vascular access, transplant survival, patient education, and psychosocial impact.

Conclusions:

  • Kidney disease research priorities are diverse, but patient engagement is infrequent.
  • Current research prioritization processes are often not fully described.
  • Transparent, patient-engaged processes are needed to align research with shared priorities and optimize resource investment.