Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Video

Updated: Apr 18, 2026

Competitive Genomic Screens of Barcoded Yeast Libraries
11:59

Competitive Genomic Screens of Barcoded Yeast Libraries

Published on: August 11, 2011

18.9K

NIH's genomic data sharing policy: timing and tradeoffs.

Jorge L Contreras1

  • 1University of Utah, S.J. Quinney College of Law and Department of Human Genetics, 332 South 1400 East, Salt Lake City, UT 84112-0731, USA.

Trends in Genetics : TIG
|January 27, 2015
PubMed
Summary
This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

The SNP consortium: background and context.

Journal of law and the biosciences·2026
Same author

Impact of the 23andMe bankruptcy on preserving the public benefit of scientific data.

Nature genetics·2025
Same author

R2B Contracts: Complexities And Considerations When Contracting With Universities And Other Not-For-Profit Research Organisations.

LES nouvelles. Licensing Executives Society (U.S.A.)·2025
Same author

Industry price guarantees for publicly funded medicines: learning from Project NextGen for pandemics and beyond.

Journal of law and the biosciences·2024
Same author

Contrasting academic approaches to COVID-19 vaccine production and distribution: What can the Oxford and Texas experiences teach us about pandemic response?

Health affairs scholar·2024
Same author

Access to affordable medicines: obligations of universities and academic medical centers.

Gene therapy·2023
Same journal

The future of marsupial gene editing: What's in the (tool) pouch?

Trends in genetics : TIG·2026
Same journal

Genetic suppressors as new therapeutic targets for Mendelian diseases.

Trends in genetics : TIG·2026
Same journal

Beyond housekeeping: snRNA diversity, regulation, and human disease.

Trends in genetics : TIG·2026
Same journal

Rethinking mitochondrial metabolism: Intraindividual variability meets population constraints.

Trends in genetics : TIG·2026
Same journal

A role for epigenetics in rapid adaptation.

Trends in genetics : TIG·2026
Same journal

The myth of asexual fungi.

Trends in genetics : TIG·2026
See all related articles

NIH's Genomic Data Sharing policy aims to balance quick data release with producer analysis time. This study evaluates how effectively the policy achieves this crucial balance for genomic and phenotypic data.

Area of Science:

  • Genomics
  • Bioinformatics
  • Data Science

Background:

  • The National Institutes of Health (NIH) implemented a new Genomic Data Sharing (GDS) policy.
  • This policy mandates sharing of human and model-organism genotypic and phenotypic data.
  • The policy aims to balance prompt data accessibility with necessary analysis embargo periods for data producers.

Purpose of the Study:

  • To critically assess the effectiveness of the NIH Genomic Data Sharing policy.
  • To determine if the policy successfully balances rapid data dissemination with adequate time for data producer analysis.

Main Methods:

  • Policy analysis
  • Review of data sharing practices
  • Assessment of embargo period utilization

More Related Videos

Reusable Single Cell for Iterative Epigenomic Analyses
10:28

Reusable Single Cell for Iterative Epigenomic Analyses

Published on: February 11, 2022

1.8K
Polysome Profiling without Gradient Makers or Fractionation Systems
05:56

Polysome Profiling without Gradient Makers or Fractionation Systems

Published on: June 1, 2021

6.6K

Related Experiment Videos

Last Updated: Apr 18, 2026

Competitive Genomic Screens of Barcoded Yeast Libraries
11:59

Competitive Genomic Screens of Barcoded Yeast Libraries

Published on: August 11, 2011

18.9K
Reusable Single Cell for Iterative Epigenomic Analyses
10:28

Reusable Single Cell for Iterative Epigenomic Analyses

Published on: February 11, 2022

1.8K
Polysome Profiling without Gradient Makers or Fractionation Systems
05:56

Polysome Profiling without Gradient Makers or Fractionation Systems

Published on: June 1, 2021

6.6K

Main Results:

  • Preliminary findings suggest challenges in achieving the intended balance.
  • Analysis indicates potential for extended embargo periods impacting data accessibility.
  • Further investigation is needed to fully quantify the policy's impact.

Conclusions:

  • The NIH GDS policy presents a complex framework for genomic data sharing.
  • Ongoing evaluation is essential to optimize the balance between data sharing and producer needs.
  • Refinements may be necessary to ensure timely and equitable access to valuable genomic datasets.