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Development and Implementation of a Multi-Disciplinary Technology Enhanced Care Pathway for Youth and Adults with Concussion
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The headache electronic diary for children with concussion.

Tracy Ann Pasek1, Lisa W Locasto, Joseph Reichard

  • 1Author Affiliations: Clinical Nurse Specialist (Dr Pasek), Pain/Pediatric Intensive Care Unit, Children's Hospital of Pittsburgh of University of Pittsburgh Medical Center (UPMC); Assistant Professor of Nursing (Dr Locasto), Robert Morris University, Pittsburgh; Software Engineer Consultant (Mr Reichard) and Neuropsychologist (Dr Fazio Sumrok), UPMC Sports Medicine Concussion Program; Neuropsychologist, UPMC Sports Medicine Concussion Program, and Assistant Professor (Dr Johnson), Department of Orthopaedic Surgery, University of Pittsburgh; and Assistant Research Director, UPMC Sports Medicine Concussion Program, and Associate Professor (Dr Kontos), Department of Orthopaedic Surgery, University of Pittsburgh, Pennsylvania.

Clinical Nurse Specialist CNS
|February 6, 2015
PubMed
Summary

A new electronic headache diary for children with concussion (HED-CC) was developed and found to be feasible and useful for tracking headache symptoms. This tool aids in better assessment and documentation of concussion-related headaches in pediatric patients.

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Area of Science:

  • Pediatric Neurology
  • Sports Medicine
  • Digital Health

Background:

  • Concussion-related headaches are common in children and adolescents.
  • Accurate assessment and documentation of headache symptoms are crucial for effective management.
  • Existing methods for tracking headache pain in pediatric concussion patients may be limited.

Purpose of the Study:

  • To develop a prospective, real-time, age-appropriate electronic headache pain diary for children.
  • To evaluate the clinical feasibility and utility of this electronic diary for assessing and documenting concussion headaches.

Main Methods:

  • A mixed-methods approach combining qualitative interviews and quantitative surveys.
  • Development of a prototype electronic diary (HED-CC) based on child and clinician input.
  • Piloting the HED-CC with pediatric concussion patients (aged 12-17) and concussion expert clinicians.

Main Results:

  • Children recommended features like calendar/clock functions, head views, customizable pain descriptors, and personalization for the diary.
  • All child participants believed the HED-CC would be helpful for tracking headaches and likely to be used by peers.
  • Clinicians found the HED-CC to be feasible and useful for headache assessment and documentation.

Conclusions:

  • The HED-CC offers a thorough method for assessing and documenting postconcussion headaches in children.
  • Real-time, appealing, and age-appropriate symptom tracking enhances data accuracy and aids clinicians in understanding and treating headaches.
  • Further research with larger samples is needed to confirm clinical benefits and establish reliability/validity.