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Developing patient reference groups within general practice: a mixed-methods study.

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Summary
This summary is machine-generated.

Patient Reference Groups (PRGs) show varied development and operation, often lacking strategic vision within healthcare reforms. General practices must guide PRGs toward strategic direction for effective patient and public engagement.

Keywords:
general practiceincentivespatient groupstypology

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Area of Science:

  • Health Services Research
  • Public Health Policy
  • General Practice Management

Background:

  • Clinical Commissioning Groups (CCGs) mandate meaningful patient and public engagement and involvement (PPEI).
  • Financial incentives encourage general practices to establish Patient Reference Groups (PRGs) under recent health reforms.

Purpose of the Study:

  • To assess the impact of the patient participation direct enhanced service (DES) on PRG development.
  • To investigate PRG influence on general practice decision-making and their interaction with CCGs.

Main Methods:

  • A mixed-methods approach was employed across three case study sites in England.
  • An 18-month evaluation of PPEI in commissioning included a sub-study on PRGs using documentary and web-based analysis.

Main Results:

  • Significant variation exists in PRG establishment, with active PRGs ranging from 27% to 93% of practices.
  • PRGs displayed diverse operational models (virtual/tangible, GP/patient-led) and were largely confined to practice-level activities within DES parameters.
  • A lack of strategic vision was identified concerning PRGs' role in the broader PPEI framework.

Conclusions:

  • The operationalization of PRGs is diverse and appears disconnected from strategic vision or overarching PPEI frameworks.
  • While local issues are important, General Practitioners (GPs) need to foster strategic direction in PRGs to meet health reform objectives.