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Children's Views on Long-Term Screening for Type 1 Diabetes

Ulrica Swartling1, Gert Helgesson2, Johnny Ludvigsson3

  • 1Lund University, Sweden Linköping University, Sweden ulrica.swartling@med.lu.se.

Journal of Empirical Research on Human Research Ethics : JERHRE
|March 10, 2015
PubMed

Insights

Children generally view pediatric research positively, trusting researchers and valuing involvement. However, they express concerns about blood sampling and disease risks in long-term studies.

Area of Science:

  • Pediatric Research
  • Medical Ethics
  • Child Psychology

Background:

  • Increasing number of medical research studies involving children.
  • Limited understanding of children's perspectives on research participation.
  • Long-term birth cohort studies present unique ethical considerations.

Purpose of the Study:

  • To explore children's views on participating in a long-term screening study for type 1 diabetes.
  • To understand children's attitudes towards pediatric research.
  • To identify key factors influencing children's willingness to participate in research.

Main Methods:

  • Survey of 5,851 children aged 10-13 years.
  • Exploration of children's attitudes towards research participation.
  • Analysis of children's concerns and preferences regarding medical research.

Main Results:

  • Children aged 10-13 generally hold a positive attitude towards pediatric research.
  • Trust in researchers is a significant factor for children's participation.
  • Children emphasize the importance of receiving information and being involved in decision-making.
  • Concerns were raised regarding blood sampling procedures and potential disease risks.

Conclusions:

  • Pediatric research involving children requires addressing their concerns about procedures and risks.
  • Enhancing communication and shared decision-making can improve children's research participation.
  • Building trust between researchers and child participants is crucial for successful long-term studies.

Keywords:
assentchildrenresearch ethicsscreeningtype 1 diabetes

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