Implementing a telephone based peer support intervention for women with a BRCA1/2 mutation.

Area of Science:

• Oncology
• Genetics
• Psychosocial Support

Background:

• Women with BRCA1/2 mutations experience significant distress due to complex risk management and communication challenges.
• Existing support systems may not fully address the unique needs of this population.

Purpose of the Study:

• To implement and evaluate a peer-support program for women with BRCA1/2 mutations.
• To assess program satisfaction, identify challenges, and gather lessons learned for future interventions.

Main Methods:

• A 4-month one-on-one peer-support program matching BRCA1/2 mutation carriers with trained peer volunteers.
• Data collection via call logs and surveys on satisfaction, contact preferences, and program experiences.

Main Results:

• High satisfaction reported by both peer volunteers and support recipients.
• 80% of peer-recipient pairs concluded contact by mutual agreement.
• Peers identified difficulty in contacting recipients as a primary challenge.

Conclusions:

• Peer support is a feasible and effective intervention for reducing distress in women with BRCA1/2 mutations.
• Greater flexibility in communication methods, such as incorporating text messaging and email, is crucial for program success.
• A mixed-medium approach tailored to recipient needs may enhance engagement and long-term effectiveness.