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Normalizing: adolescent experiences living with type 1 diabetes.
Elizabeth Babler1, C June Strickland2
1University of Wisconsin-Milwaukee, College of Nursing, Milwaukee, Wisconsin (Dr Babler)
The Diabetes Educator
|April 1, 2015
Summary
Adolescents with type 1 diabetes develop "normalizing" strategies to integrate the condition into their lives. This involves accepting changes and managing routines to foster a sense of normalcy.
Area of Science:
- Adolescent Health
- Psychology
- Medical Sociology
Background:
- Adolescence is a critical developmental period marked by unique psychosocial challenges.
- Type 1 diabetes management requires significant adaptation during these formative years.
Purpose of the Study:
- To explore adolescents' lived experiences with type 1 diabetes.
- To develop a theoretical framework for designing interventions that support diabetes management in adolescents.
Main Methods:
- Employed classical grounded theory methodology.
- Conducted 15 in-depth interviews with 11 Caucasian adolescents (ages 11-15) diagnosed with type 1 diabetes.
- Utilized constant comparative analysis for data interpretation and theoretical model development.
Main Results:
- Developed a theoretical model centered on "normalizing" diabetes.
- "Normalizing" involves integrating diabetes into daily life by establishing routines and accepting the condition as "part of me."
- Key components of normalizing include recognizing life changes, proactive crisis prevention, social disclosure for support, assuming care responsibilities, accepting a "new normal," and future-oriented hope.
Conclusions:
- Adolescent developmental tasks are intertwined with diabetes management challenges.
- Findings reframe diabetes management towards supporting wellness and normalcy, rather than solely focusing on illness.
- Results offer valuable insights for healthcare providers, parents, researchers, and adolescents navigating type 1 diabetes.
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