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Sustainability considerations for health research and analytic data infrastructures
Adam Wilcox1, Gurvaneet Randhawa2, Peter Embi3
1Intermountain Healthcare.
EGEMS (Washington, DC)
|April 8, 2015
Summary
Sustainable data infrastructures are crucial for patient-centered outcomes research (PCOR) and comparative effectiveness research (CER). Developing adaptive strategies considering assets, expansion, complexity, and stakeholders ensures long-term value and research benefits.
Area of Science:
- Health Informatics
- Health Services Research
Background:
- Significant US investment in data infrastructures for patient-centered outcomes research (PCOR) and comparative effectiveness research (CER) is ongoing.
- Initial funding is insufficient for long-term sustainability of these critical research infrastructures.
- Innovative financing models are needed to sustain infrastructures and maximize their value for PCOR and CER.
Purpose of the Study:
- To define key factors for developing flexible and adaptive sustainability strategies for research data infrastructures.
- To identify important considerations and lessons learned for maintaining these infrastructures to realize long-term benefits.
Main Methods:
- Experience-based development of sustainability strategies.
- Definition and description of key factors: assets, expansion, complexity, and stakeholders.
- Identification of lessons learned, relating them to defined sustainability factors.
Main Results:
- Sustainability strategies must adapt to the unique characteristics of each resource or infrastructure.
- Key factors for adaptive strategies include assets, expansion, complexity, and stakeholder engagement.
- Lessons learned highlight the interactions between these factors for successful infrastructure maintenance.
Conclusions:
- A framework for sustainability strategies is proposed, based on expert perspectives and experiences.
- Flexibility and adaptability are essential for long-term data infrastructure viability.
- Further research on collaborative models can enhance sustainability frameworks for research infrastructures.
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