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Updated: Apr 13, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
[Involvement of patients has not been fully implemented in Danish health care]
Line Hjøllund Pedersen1, Annette Wandel, Morten Freil
1Videnscenter for Brugerinddragelse i Sundhedsvæsenet (ViBIS), Kompagnistræde 22, 1., 1208 København K. lip@vibis.dk.
Abstract:
In Denmark, there is a focus on patient involvement. Health professionals want to involve patients, but have diverse interpretations of what this entails, which complicates knowledge dissemination. Interventions are scattered and diverse, and often do not systematically involve patients' knowledge. Studies have shown that patients want to be involved and contribute with knowledge, but this only happens to a limited degree. Involvement of patients is often limited to involving their resources in the form of self care rather than integrating their knowledge into their treatment and care.
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