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Determinants of access to pediatric hospice care: A conceptual model

Lisa C Lindley1

  • 1University of Tennessee - Knoxville, College of Nursing.

Journal of Hospice and Palliative Nursing : JHPN : the Official Journal of the Hospice and Palliative Nurses Association
|May 19, 2015
PubMed

Insights

Making the decision for pediatric hospice care is difficult for families. This study models the factors influencing access to pediatric hospice care, using established healthcare theories for better understanding.

Area of Science:

  • Pediatric Palliative Care
  • Healthcare Utilization Models

Background:

  • Accessing pediatric hospice care presents challenges for families of children with life-limiting illnesses.
  • Previous research identified determinants but lacked theoretical grounding.

Purpose of the Study:

  • To develop a conceptual model of pediatric hospice care access.
  • To ground the determinants of hospice access in the Andersen Behavioral Healthcare Utilization Model.

Main Methods:

  • Literature review of hospice care.
  • Application of the Andersen Behavioral Healthcare Utilization Model.
  • Identification of predisposing, enabling, and need factors.

Main Results:

  • A conceptual model was developed to explain hospice access.
  • Predisposing factors include demographics, social support, and beliefs.
  • Enabling factors involve family and community resources; need factors include perceived and evaluated needs.

Conclusions:

  • The proposed model integrates key determinants of pediatric hospice care access.
  • This framework can guide future research and clinical practice.
  • Understanding these factors is crucial for supporting families in decision-making.

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