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Patients' experience of portacaths in cystic fibrosis: questionnaire-based study

Lynne A McIntosh1, Gregor M Walker1

  • 1Department of Paediatric Surgery, Royal Hospital for Sick Children, Glasgow, UK.

Archives of Disease in Childhood
|June 3, 2015
PubMed

Insights

Lateral chest wall portacaths in children with cystic fibrosis (CF) are cosmetically acceptable and cause fewer daily activity issues than anterior placements. Most patients were satisfied with information and cosmetic outcomes.

Area of Science:

  • Pediatric Surgery
  • Medical Devices
  • Cystic Fibrosis Research

Background:

  • Portacaths are frequently utilized in pediatric patients with cystic fibrosis (CF).
  • Assessing patient satisfaction is crucial for optimizing medical device use in chronic conditions.

Purpose of the Study:

  • To evaluate patient satisfaction with lateral chest wall portacaths in children diagnosed with CF.
  • To compare the cosmetic acceptability and impact on daily activities of lateral versus anterior portacath placements.

Main Methods:

  • A cohort of children with CF and indwelling portacaths in a specific region was identified.
  • Questionnaires were distributed to patients with lateral chest wall portacaths, collecting data on preoperative information, cosmesis, and activity interference.
  • Radiographic imaging was used to confirm portacath placement location.

Main Results:

  • Out of 42 patients with lateral chest wall ports, 25 (60%) responded to the questionnaire.
  • A high satisfaction rate was reported for preoperative information (88%) and cosmesis (92%).
  • Minor issues with clothing (24%), sports (32%), and seatbelts (12%) were noted, primarily with indwelling needles during physiotherapy.

Conclusions:

  • Lateral chest wall portacaths demonstrate good cosmetic acceptance in pediatric CF patients.
  • The impact of lateral portacaths on daily activities appears less significant compared to anterior placements.
Abstract

Keywords:
Cystic Fibrosisimplantablepatient satisfactionportacath

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