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Memorandum "Open Metadata". Open Access to Documentation Forms and Item Catalogs in Healthcare
M Dugas1, K-H Jöckel, T Friede
1Univ.-Prof. Dr. Martin Dugas, Institute of Medical Informatics, University of Münster, Albert-Schweitzer-Campus 1/A11, 48149 Münster, Germany,
Methods of Information in Medicine
|June 26, 2015
Summary
Most healthcare documentation forms are not publicly accessible. Making these forms open access could improve healthcare information systems and medical research by enabling wider use and sustainable publication.
Area of Science:
- Medical Informatics
- Biometry
- Epidemiology
Background:
- Most healthcare documentation forms, including patient care assessments and clinical study Case Report Forms (CRFs), are not publicly accessible.
- This lack of access hinders the improvement of healthcare information systems and medical research networks.
Purpose of the Study:
- To develop recommendations for improving the accessibility of healthcare documentation forms.
- To promote open access principles for medical documentation to benefit the scientific community.
Main Methods:
- Formulated six recommendations for developers and users of healthcare documentation forms.
- Advocated for open access, sustainable publication, and referencing of documentation sources.
Main Results:
- Six key recommendations were developed on behalf of German medical informatics, biometry, and epidemiology chairs.
- Open access to documentation forms is proposed as a method to enhance healthcare information systems and research.
Conclusions:
- Open access to medical documentation forms is crucial for advancing healthcare information systems and medical research.
- Forms should be made available to the scientific community, sustainably published using international standards, and properly referenced.
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