Related Experiment Videos
FAIR data sharing, but what about the RREST? Towards the FAIRRREST Principles in health data sharing
Susan E Smith1, Teyl Engstrom2, Clair Sullivan3
1Cardiothoracic Surgery Research Unit, The Prince Charles Hospital, 627 Rode Road, Chermside, Queensland 4032, Australia.
Abstract:
Data-driven improvement is essential for advancing healthcare delivery, artificial intelligence applications and achieving a learning health system; yet progress is constrained by persistent challenges in health data sharing and reuse. The vocabulary, governance models and operational processes that shape health data sharing and reuse remain fragmented and insufficiently standardised. The FAIR Principles (Findable, Accessible, Interoperable, and Reusable) were developed to promote data sharing in scholarly outputs and research objects. They are increasingly referenced across health contexts, but their technical focus does not address the societal, ethical and governance considerations essential in healthcare. This article builds on FAIR, proposing the FAIRRREST Principles: FAIR + Responsibility, Reciprocity, Ethics, Sustainability and Transparency. FAIRRREST is intended to complement existing technical standards by integrating existing considerations into a coherent and memorable healthcare-oriented framework. We propose that FAIRRREST provides a high-level principles framework for responsible data sharing and reuse across all healthcare contexts.
Related Concept Videos
Ethical Standards II
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy and...
Ethical Standards I
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
Principles of Disease Surveillance
Standards of Care II
Purpose of Health Records I
Here's a breakdown of how health records serve these purposes:
Purpose of Health Records II